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The hardest part, Geiger says, is getting people to come forward, especially when many support groups out there, she says, can make you feel like youve done something wrong. The person who has the disease is clearly going through a really hard time, but then it kind of becomes all about them, and the people around that love [them], well youre just totally getting bodied by this situation, Geiger said

These patients may therefore be considered to carry a true genetic background of hereditary optic neuropathy, possibly enhanced by excessive alcohol consumption

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